tag:blogger.com,1999:blog-6795982478040674572.post2340690383045984407..comments2017-03-01T15:35:12.751-08:00Comments on From One Mom's Heart to Others: Bad RageAmyhttp://www.blogger.com/profile/04486021077565232145noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6795982478040674572.post-24786605189889690862017-03-01T15:35:12.751-08:002017-03-01T15:35:12.751-08:00Hi . Im a parent whos child has not been diagnosed...Hi . Im a parent whos child has not been diagnosed yet but i do believe my child may need to be soon.hes only 5 years old..ive been feeling so hopeless as a parent..im seeking advice from one mother to another .would love to hear more about your storyjayda ramirezhttps://www.blogger.com/profile/18191241057819075220noreply@blogger.comtag:blogger.com,1999:blog-6795982478040674572.post-38503922495789242952010-02-23T10:17:03.222-08:002010-02-23T10:17:03.222-08:00I am so familiar with these rages. I just want to...I am so familiar with these rages. I just want to assure you that if McKenzie is put on the right med mix for her, the rages will subside to almost nothing. The key is the right med mix, which may take a while to find, as you know. I would be interested to see how she would test with a QEEG study, like they do at Meridell. Amantadine was the magic drug for Caroline, as well as a very high level of Trileptal, which take care of those seizure like rages that seem to come from nowhere. We haven't seen those kind of scary rages since those two drugs were added in. Have hope, we know that medications won't cure them but the symptoms can be greatly lessened. As far as self-control goes, I know exactly what you mean by not allowing her to act like that, but, it is very hard for them to NOT act like that if their brain's don't have the chemicals they need to function. We have seen with Caroline that she wasn't able to have that kind of self-control until she was truly stabilized.Meganhttps://www.blogger.com/profile/14386058494236428900noreply@blogger.comtag:blogger.com,1999:blog-6795982478040674572.post-57665366343927476742010-02-23T08:38:52.175-08:002010-02-23T08:38:52.175-08:00Amy, I'm so sorry. Everytime I read these, I g...Amy, I'm so sorry. Everytime I read these, I get sick at my stomach. Again, it's one of those male things....how to solve!!?? Very rarely do you hear from me when you post these comments. It is simply, I don't know what to say. Just know that I love you and that I wish every minute I could snap my fingers and make this go away.Rosshttps://www.blogger.com/profile/14717286745274001296noreply@blogger.com